My Last Day at the Hospital

September 24th, 2009 Posted in Uncategorized | 1 Comment »

Well, since the last time I wrote, both Jean David and Jackie Lynn have returned to Haiti.  Jean David left Sept. 14 and Jackie left the next day.  I was very sad to see them go, but I know JD and Jackie and both of their mothers were so excited to go home and see their families.  It makes me happy to know that they are at home and reunited with their families after all this time.  I would need to clarify this with Dr. Nelson - but I think JD and his mom were here for about three months; Jackie and her mom about 2-3 months.

Today is my last day at the hospital…I can’t believe it’s already here!  Time goes by so quickly!  Tomorrow was supposed to have been my last day, but today is a Dominican holiday and rather than have today off, the director of the hospital decided to give us a three-day weekend!  :)

Anyway, I’m very sad that today is it.  I have made great friends here - with the patients, their parents and with the hospital staff as well. 

The employees and administration of the hospital have been so kind and accomodating to me.  I have spent time with many of them outside of the hospital.  And, of course, there’s Felipe!!!  Felipe has also been an amazing friend - always looking out for me, always bringing me food, food and more food!!  :)  I have spent so much time with her and her two kids that they are like family now!

I am sad that I won’t be around to continue watching “my kids” progress.  Every one of the children and teens that I have worked with have embraced me with open arms and have given me days filled with smiles and laughter….even though for many of them, therapy sessions were painful and/or hard work.

So, it’s time for me to head to the hospital now.  This last day is going to be difficult…I’m not a fan of good-byes.  But, this is not good-bye, really…I have exchanged email addresses with patients, their mothers, with hospital staff  - so we will be in touch. 

Many thanks to INMED and CURE Dominicana! I am so fortunate to have had this experience.  It has definitely made an impact on my life. 

Another patient, Jean David.

September 13th, 2009 Posted in Uncategorized | No Comments »

Jean David’s first walk in the parallel barsJean David’s first walk in the parallel barsJean David’s first walk in the parallel barsJean David’s first walk in the parallel barsJohn David in the standing frame

This is seven-year old, Jean David from Haiti. Jean David has Arthrogryposis, a rare genetic disorder which is characterized by multiple joint contractures and can include muscle weakness, scoliosis and/or growth retardation, among other things.

Before Jean David saw Dr. Nelson, his legs were severely contractured with both hips in flexion, abduction and external rotation.  His hips may have even been dislocated, which occurs frequently with this type of deformity.  Additionally, his knees were in flexion and he had bilateral clubfoot deformities.  Therefore, walking was clearly not an option for Jean David.

Jean David underwent four surgeries to correct the bony deformities and was then casted from hips to toes.  Now, Jean David wears braces to keep the re-alignment going and in check.  The braces have to be custom-made and are super-expensive.  Since his family couldn’t afford them, these braces were donated to Jean David.

We began weight-bearing activities at the end of August, and on September 1, Jean David took his first-ever steps in the parallel bars!  Due to Jean David’s amazing upper body strength and determination, Jean David we have already progressed him to walking with a walker.  He is a such a hard-worker!! 

On Sept 4, Dr. Nelson and our Drector of Clinics, Robbie Jackson, donated the money to buy Jean David his own walker.  They will be returning to Haiti this coming week, and Jean David will be able to walk at home now with assistance from his mom and with the walker.  (Just an FYI: the walker we got him cost $100 US dollars and doesn’t include wheels. I’m thinking Jean David may really benefit from wheels, but who knows how much wheels will cost! Anyone want to donate some walker wheels for a pediatric walker???) 

Neither Jean David nor his mother speak English or Spanish.  Luckily, Jackie’s mom, who is also Hatian, speaks English, so when she is also at therapy, she provides translation assistance for us.  But, if she’s not there, we just use a lot of gestures and demos.  Jean David and his mother are so sharp, they usually understand what it is we’re asking.  And, I am actually learning a teeny tiny bit of Creole along the way! 

 I’m so happy to have been able to take part in Jean David’s therapy.  He is such a strong, motivated and intelligent child.  What an experience!

One of our patients, Pedro.

September 13th, 2009 Posted in Uncategorized | No Comments »

img_3964.JPGimg_3963.JPGPedroPedroThis is Pedro, he’s 11-years old. He was born with Vater Syndrome aka Vater Association. Vater Syndrome or Association describes children born with a series of multiple birth defects which show a related but sporadic relationship. There are many different types of birth defects a Vater child can have.  Fortunately, Vater is pretty rare.

One of Pedro’s birth defects was radial aplasia, meaning that Pedro’s radius did not develop normally.  If the radius bone doesn’t grow, the thumb usually doesn’t grow either.  So, because of the abnormal growth of his radius bone, Pedro was born with three fingers, no thumb.

Dr. Nelson moved one of his fingers in order to make a thumb in a surgical procedure called “pollicization” or in Spanish, “pulgarizacion”.   In this surgery, the index finger is transferred to the position of the thumb. The finger is not removed, but rather rotated and brought down into the thumb position.

Felipe and I are working with Pedro to strengthen and increase the range of motion in Pedro’s hand and fingers.

Sorry, the pictures aren’t great. My camera battery was dying, so I had to take quick pictures.

Still Amazed

August 29th, 2009 Posted in Uncategorized | 3 Comments »

I just finished my fourth week here in the DR, and every day I find myself so happy, fortunate and proud to be here.  

Although I had previously lived abroad in a developing country, I am only just now fully understanding the desperate need for medical missions in developing nations. This whole experience reminds me over and over again how grateful I am to live in a country whose medical system, while definitely flawed in its own ways, demands regulation and standardization in the education of our physicians and of the delivery of health care in general.  

I know when I go to a hospital in the US that I am going to recieve good medical care - whether I have insurance or not.  I naturally assume that the physicians are well-trained and competent.  I expect that if I need surgery, the surgeon will be well-educated and will have had years of residency and fellowship before practicing on his own.  

Yes, we all have had experiences in the US where we disagreed with the physician. Yes, we have all had experiences where two physicians have given us two completely differing opinions or plans of care.  But, in developing countries, the discrepancy between a “competent” and “incompetent” physician is a whole other phenomenon that we usually don’t need to worry about in the States. 

When I first got here, I was told that incompetent surgeons are one of the many reasons for the overwhelming number of orthopedic deformities in the DR.  This struck me as incomprehensible, and I couldn’t wrap my brain around how this could be true.  How could a surgeon NOT know what he is doing and still have a license? 

Later, when when it was explained to me how and why this does happen, another wave of disbelief and anger, but mostly, sadness washed over me.  How could this be?  Who protects the patients?  Why does the government let this happen? Why doesn’t anyone try to change the system?  And does the negligent surgeon or physician feel any remorse?  Do they not remember that they are supposed to be compassionate healers?  Did they not take the Hippocratic Oath?  Have they forgotten that, above all else, these are human beings??? 

Upon further questioning, this is what I’ve learned over the last couple of weeks about how the medical educational system works here:

 - There is not a formalized entrance test (like the MCAT) in order to get into medical school here.

- Students can begin medical school straight out of high school.

- The basic requirements to get into med school are to:  1) Have inside connections or 2) Be able to pay your way in.   

- “Doctors” are not necessarily expected to demonstrate proficiency, skill, knowledge, or understanding of medicine or sugery upon completion of their training.

Obviously, this is not true for every Dominican physician, and I’m sure it can’t be true for every Dominican medical school.  But, it does occur.  And because it does, there is a great likelihood for the people of this country to recieve substandard - if not completely negligent - medical care.  And there seems to be no legal repercussions for it either. Without the fear of consequences,  patients have no protection from incompetent physicians.  

At CURE Dominicana, I see patients on a daily basis who were initially treated (or more accurately, not treated) at another hospital by an unqualified surgeon.  The patients then find out about CURE after the fact and come to our surgeons later for either initial treatment or for a correction of a first surgery. 

For example, last Friday I met a patient named Yemen.  Yemen comes from a small town, about 1 1/2 hours from Santo Domingo.  He is 17-years old and the bread-winner for his family.  In March of this year, Yemen got into an accident while working and was taken to the largest trauma hospital in the country.  Yemen had a fractured jaw, broken ribs (?) and a shattered left hip.  The physicians at the hospital addressed the fractured jaw and ribs, but did not even take an x-ray of his hip. 

When Yemen continued to complain of hip pain, they x-rayed his hip and found it was badly fractured.  But, they told him they could not operate since he would likely die on the OR table.  So, instead, the doctors put a cast on Yemen’s CALF.  Obviously, the cast did nothing for his fractured hip and later the doctors removed the cast and sent him home with a brace for the calf instead. 

Luckily for Yemen, he was fortunate to meet Kristin, a missionary here, who had worked with a previous CURE patient, and directed Yemen and his family to CURE.  Approximately five months after Yemen’s injury,  he finally had surgery to reconstruct his hip.  

Yemen is now approximately three weeks post-op and he came to physical therapy for the first time last Friday for gait training with crutches.  He will be non-weight bearing on the left leg for at least three months. 

On a side note, Yemen’s family may lose their home (which Kristin describes as a ”tin shack”) if they cannot pay a substantial amount of money towards Yemen’s medical bills by the end of the year.  As previously mentioned, Yemen is the bread-winner in his household.  I don’t know how his family intends to handle their financial situation, but I do know that Yemen’s mom is always smiling and always seems to be at peace, despite what is going on in her family’s life.     

Another example of medical negligence comes in the form of a 13-year old boy named Neftaly.  Neftaly broke his elbow and underwent surgery at another hospital - a surgery which left him with a non-healing fracture and the inability to use arm.   After a second surgery at CURE, Neftaly has just finished his post-op physical therapy with us and now has full range of motion of his elbow, but continues to lack the strength that the average 13-year old should have.  Additionally, he still has a bony deformity of his elbow which the surgeon at CURE was unable to fix - at least with the first surgery. 

I don’t know what the plan is for Neftaly now.  I don’t know if his family wants to address the deformity or if they surgeons are even able to address it, but at least he is now able to use his arm.

Not only have I learned some things about the medical educational systerm here, I have also learned more about the hospitals in the DR:

- The public hospitals are notorious for substandard care including lack of attention to patients’ needs, poor bedside manner, lack of available equipment necessary to diagnose and/or treat the patients and inadequate cleanliness of the facilities.

- There are private hospitals, which provide better overall care and outcomes, but they are very expensive and the average Dominican cannot afford them.  These hospitals have ERs, but if you can’t pay when you come through the doors, they’ll send you away - emergency or not.  

- Due to the above, many people choose not to go to the doctor or hospital at all.  They hope (?) that the injury, wound, sickness, lump, infection, etc will go away or heal itself on its own.

Within my first week at the hospital at the in DR, I saw my first example of this sad situation.  A patient arrived to Dr. Nelson’s clinic with a tumor that stretched from his hip to his distal thigh.  The tumor was found to be a slow-growing malignant cancer.   Several days later, Dr. Nelson had to perform a hemipelvectomy (amputation of the entire leg, hip and half of the pelvis) on the patient in order to remove all of the tumor - which according to the medical students who helped with the surgery weighed between 60-70 pounds!!!!! 

Can you imagine any person in the States waiting that long before going to see a doctor?  If an American noticed a lump on their thigh, it’s more than likely that, even if uninsured, they would be heading straight to either a doctor’s office or to a hospital ER. 

The health care problems in the DR are so pronounced that one of the nation’s most successful male singers, Juan Luis Guerra, wrote a song about them which was released in 1999.  For those who are unaware of the problems that exist in the DR, the song just merely seems to be humerous.  But, really, the song is a sarcastic and sad commentary on the state of health care in the DR.  A Dominican friend of mine that I met here introduced me to the song in the last week, and I can’t stop thinking about it.  The lyrics are powerful and honest, but in a very simple way. 

To end this blog, I’m posting the translated lyrics to Juan Luis Guerra’s “El Niagra en Bicicleta” which is a Dominicanism meaning ”to overcome many problems” and which literally translates to “The Niagra (Falls) on Bicycle”.

Lyrics:

I fainted one Sunday morning
When I least expected it.
I fell hard, like a soursop fruit, onto a sewer grate.
Is it my blood pressure? Or has my bilirubin level gone up?

I got a fever,
And started to turn white like a mothball.
They took me to a hospital “of the people” (supposedly).
In the emergency room, the receptionist was listening to the lottery numbers.
(“30,000 pesos!”)

“Someone take pity on me!”,
I shouted,  losing consciousness,
And a nurse approached my ear and said
“Calm down, Bobby, calm down.” [A phrase used to talk to a dog]

She caressed me with her Ben Gay hands and asked me
“What happened, champ?”
And I told her, in intimate detail, what had happened to me.

“We need to check your blood pressure,
but the room is occupied.
And, my dear, in this hospital there’s no electricity for an EKG.”

I opened my eyes like the full moon,
and I grabbed my head,
Because it’s very hard
To cross Niagara Falls on a bicycle.
 
Don’t tell me that the doctors left.
Don’t tell me that they don’t have anesthesia.
Don’t tell me that someone drank the alcohol,
And that the thread for stitches
Has been sewn into a tablecloth.

Don’t tell me that the forceps are lost,
And the stethoscope is off partying,
That the x-ray machine has burnt out,
And the IV fluids have been used to sweeten the coffee.

I leaned on her shoulders like a lame man leans on his crutch
And I said to her “What should I do, princess?”
And on a prescription slip she wrote very sweetly
“I’m sorry, champ.”

She caressed me with her Ben Gay hands and went on her way,
And I heard her clearly when she said to another patient
“Calm down, Bobby, calm down.”

I dropped my eyes to half-mast and I grabbed my head,
Because it’s very hard
To cross Niagara Falls on a bicycle
.

  

My First Week in the DR

August 9th, 2009 Posted in Uncategorized | 2 Comments »

Well, I made it to the Dominican Republic and have finished my first week here!  And I can honestly already say that this experience has been and will continue to be eye-opening and a wonderful learning experience.

First, let me say that I am a physical therapist from Kansas City, MO.  I have ten years of experience working in adult outpatient, inpatient, skilled nursing facilities and home health physical therapy. I have spent the last five years working at a large inner-city trauma hospital as an inpatient therapist seeing all types of adult patient populations.  Prior to working at my last hospital, I lived in Quito, Ecuador for about ten months and volunteered in the outpatient department of a large hospital in Quito.  Although I did work with some children there, most of the patients were in their late teens and up.  

In the Dominican Republic, I am working at Cure Hospital, Centro de Ortopedia y Especialidades.  This hospital specializes in pediatric orthopedics and provides inpatient and outpatient surgical and rehabilitative services. I will be here for eight weeks, assisting the hospital’s only physical therapist in the post-surgical rehabilitation of the children treated by Cure’s orthopedic surgeons. 

So, since I have had very little exposure to pediatric physical therapy, I have spent the last few months worried that I may not be of much help to the children and to the physical therapist here.  I knew that the need for therapy for these children is critical in helping them to regain function and a sense of “normalcy” and that the availability of professionals is limited, and I didn’t want to disappoint the people here.   But, within the first few hours of my first day at the hospital, I realized that first of all, there is not enough time to worry about such things, and secondly, that I didn’t have to be a pediatric therapy expert in order to be able to help these children. 

So, I arrived last Sunday after a full day of traveling.  I left Kansas City at 8:20 am and arrived to my apart-hotel around 9 pm.  I was greeted at the airport by a lovely man named Don Jose who provides transportation for the hospital.  Don Jose greeted me with a welcome package including a letter from the director of Cure Dominicana, some snacks and a much-welcomed bottle of water!

I am staying at the Ocean Breeze Apart-Hotel located in the Zona Colonial of Santo Domingo.  The Zona Colonial is a tourist area, close to the main tourist street of El Conde.  My room has air condition, my own bathroom, a refrigerator and stove.  It is very comfortable here, and the administrator, Alex, is very kind and accomodating and speaks both English and Spanish.

There is a medical student named Matt staying at the hotel as well.  Matt arrived the same day as me and will be here until next Sunday. 

On Monday morning, Don Jose arrived at 7:30 am to take Matt and I to the hospital.  Matt and I met our host, Orfa Gonzalez, and then were introduced to the Executive Director of CURE Dominicana, Steve Bostian, and the Medical Director, Dr. Scott Nelson.  Then, Matt and I went our separate ways.  I was taken to the physical therapy department and introduced to Altagracia Felipe, the hospital’s one and only physical therapist.  As therapy is extremely busy, Felipe, as she likes to be called, and I immediately got to work.

Felipe has worked with CURE since it was established in 2003.  She does not speak English, but since I have a Spanish background, this is not too much of a problem - except that my Spanish is rusty and the Dominicans speak quickly and with an accent which is very different from the Spanish I heard in Quito.   Despite this, I was able to communicate with Felipe, who is a very patient and kind woman with a heart of gold!

For most of the morning, I shadowed a very busy but very calm Felipe.  As the day progressed, I eventually worked with a couple of patients on my own, both of whom were straight-forward ortho cases.  I went home that day, feeling a mixture of emotions - sad because of the number of children I had seen in therapy but relieved and happy because I felt I had been able to help and grateful for the chance to work with such amazing children.  My heart was so warmed by the smiles, resilience and toughness of these kids.   The therapy is often times very painful, and some of the kids cried during therapy, but at the end, they still give Felipe a hug and kiss good-bye.

The patients we see have congenital deformities, deformities which have developed insidiously, orthopedic trauma which occured during birth, after a fall, etc.  Some of these kids have had previous surgery elsewhere to correct deformities or broken bones, but that did not heal correctly after surgery.  We see a lot of children who, post-operatively, have external fixators that they will have for months after surgery since they are used to correct club feet, genu varus or valgus, etc or to promote leg-lengthening.  The fixators are color-coded so that parents can easily make adjustments to them so that over time, the bone is restored to its correct position or length.  The children are allowed to weight-bear and get the device wet.

In addition, we see many patients with various degrees of severity of CP who have needed tendon-legthening procedures in order to be able to sit, stand and/or walk.

By the end of this first week, I was seeing my own caseload of patients and assisting Felipe with re-organizing the patients’ records.  I’m already understanding the Domincian accent with more ease, and I have all but shaken my worry and fear of not being able to help these children and the staff at the hospital.  I had a great week and am looking forward to going back to the hospital tomorrow.  I am so thankful for the opportunity to be here.  I am, once again, reminded of how fortunate we are in the States.  And, I would encourage anyone thinking of volunteering for a medical mission to do so.  It is truly an amazing learning and life experience.